Pingie: HTTP:: Ethics Rules Required for Children DNA Data

HTTP:: Ethics Rules Required for Children DNA Data
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The regulations should specifically refer to DNA samples collected from healthy children, whose parents have signed them up for long-term studies, leading ethics experts say. The data should not be made public, and released in the scientific community until the children reach an age when they can give their consent for this to happen. The recommendations appear in yesterday's (August 13th) issue of the respected journal Science, Nature News informs. “Children should be able to decide, when they're mature enough, about their full or fuller involvement,” explains the McGill University Center of Genomics and Policy director Bartha Maria Knoppers, from Montreal, Canada. She is also one of the authors of the new paper.The expert believes that the new set of measures would help protect the privacy of children around the world who are involved in long-term studies. However, not everyone is pleased with the new proposals. Some say that the method is arbitrary, and that it could!
compromise the results of many long-term studies. And, because a lot of resources are invested in such research, that's a measure that experts cannot afford to take. According to Knoppers, some of the largest biobanks in the world today, including the National Children's Study in the United States and the Mother and Ch...
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http://news.softpedia.com/news/Ethics-Rules-Required-for-Children-DNA-Data-119242.shtml

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